Steven

Steven developed psoriasis at age 14. He has used medicated shampoos and shower gels, undergone light therapy and his current treatment is Dithrocream (dithranol). He tries to be positive in the way that he copes and says he is now more accepting of having psoriasis.

Steven developed his first patch of psoriasis on his scalp in 2007. His GP diagnosed it as psoriasis, knowing that Steven’s father also has the condition, and prescribed a shampoo treatment. After 2 years, Steven began to develop psoriasis on other parts of his body, such as his arms, back and thighs. Steven says that it was good that his psoriasis developed only gradually because it gave him time to get used to it. Steven has been referred to dermatology specialists 3 times. The first time he was given creams which seemed to make no improvement. The second dermatologist referred him for phototherapy treatment without even looking at his psoriasis. This was disappointing but he felt reassured when the nurses examined his skin and confirmed that he was a good candidate for the treatment. The psoriasis on Steven’s body cleared up for 6-8 months after phototherapy, although he still had some patches on his head. Steven is currently using a course of Dithrocream (dithranol) to manage his psoriasis: he has to leave a cream on for an hour every day before washing it off, and this moves up to a stronger cream every few days after testing it on a small patch. He has seen some improvement, although he has noticed one side effect in that his psoriasis patches are looking more purple/pink. Steven uses medicated shampoos and shower gels, but dislikes how these smell and feel.

Steven tries to be positive in coping with psoriasis, preferring to learn to laugh about it than to cry about it. One way he found helpful at first was to name the patches, but he stopped when doing this became a bit obsessive. There have been a few days when Steven has felt down about having psoriasis, but these times are very rare and usually occur when other stressful things are also happening. Steven has experienced other people asking questions and making comments about his psoriasis. Sometimes these are well-intention, such as thinking he has an insect bite, but he once heard someone say nasty things. Steven tries to be prepared to answer and respond to other people’s ignorance about psoriasis. There have been occasions when Steven has felt self-conscious about his psoriasis, such as when he has been swimming, but tries not to let this stop him doing anything. He remembers feeling really triumphant when he began wearing shorts in the summer a few years ago. He is also very aware of his skin flaking, so he hoovers his bedroom and car often, and brushes off his desk at work frequently. He finds that hair gel is good because it can keep his hair in one place so that skin flakes won’t fall from his scalp and means he can sometimes style his hair to cover patches on his upper forehead.

Steven does a lot of research about psoriasis, but he has found it difficult to find the right level’ of information about it. He also says that the online discussion forums he’s seen were quite out dated and inactive. He feels that there is a gap about psoriasis to be filled that balances personal experience and scientific information. Steven thinks that it can be especially difficult for young people to learn live with a life-changing health condition. His advice is to other young people is to know that they are not alone with having psoriasis and to keep seeking the right treatments for them.

Steven uses social media to learn about others’ experiences with psoriasis and share his own.

Age at interview 22

Gender Male

Age at diagnosis 14

Steven talks about psoriasis in relation to his job.

Age at interview 22

Gender Male

Age at diagnosis 14

Steven has a Prescription Pre-payment Certificate (PPC) where he pays a fixed amount for 1 year of prescriptions charges. For him, it’s value for money.

Age at interview 22

Gender Male

Age at diagnosis 14

Steven’s friendships haven’t been negatively impacted by having psoriasis.

Age at interview 22

Gender Male

Age at diagnosis 14

Steven hoovers his bedroom and car often because of skin flaking.

Age at interview 22

Gender Male

Age at diagnosis 14

Steven talks about his visit to the Dead Sea.

Age at interview 22

Gender Male

Age at diagnosis 14

Steven’s had people make ignorant comments to him before.

Age at interview 22

Gender Male

Age at diagnosis 14

Steven tries not to let psoriasis have an emotional impact on him.

Age at interview 22

Gender Male

Age at diagnosis 14

Steven talks about coal-tar topical treatments.

Age at interview 22

Gender Male

Age at diagnosis 14

Steven talks about medicated shampoos for psoriasis.

Age at interview 22

Gender Male

Age at diagnosis 14

Steven says soap substitutes are part of his everyday life. He sometimes uses a fragranced shower gel as a treat.

Age at interview 22

Gender Male

Age at diagnosis 14

Steven’s current topical treatments are very time-consuming as he has to leave them on for an hour before washing it off.

Age at interview 22

Gender Male

Age at diagnosis 14

Steven thinks it’s easier to apply treatments to his scalp with shorter hair, but doesn’t want this to determine his look too much.

Age at interview 22

Gender Male

Age at diagnosis 14

Steven remembers a time when a dermatologist didn’t even look up from the computer, let alone examine his skin.

Age at interview 22

Gender Male

Age at diagnosis 14

Steven likes being able to try different emollients (moisturisers) to see which work for him.

Age at interview 22

Gender Male

Age at diagnosis 14

Steven’s dermatology nurse gives him detailed instructions about using dithranol topical treatments which are different to those in the leaflet.

Age at interview 22

Gender Male

Age at diagnosis 14

It was only recently that Steven read in an information leaflet that throat infections could set off psoriasis.

Age at interview 22

Gender Male

Age at diagnosis 14

Steven struggled to find an explanation of the causes of psoriasis which was pitched at the right level.

Age at interview 22

Gender Male

Age at diagnosis 14

Steven says having psoriasis on his shoulders and back wasn’t such a big deal for me because it wasn’t really visible, but it affected going swimming.

Age at interview 22

Gender Male

Age at diagnosis 14

Steven thinks it’s easier to apply treatments to his scalp with shorter hair, but doesn’t want this to determine his look too much.

Age at interview 22

Gender Male

Age at diagnosis 14

Phototherapy helped clear up most of Steven’s psoriasis for a few months.Phototherapy helped clear up most of Steven’s psoriasis for a few months.

Age at interview 22

Gender Male

Age at diagnosis 14

Itchiness has become an everyday part of Steven’s life. Family members sometimes tell him not to scratch, even if it’s a normal’ itch.

Age at interview 22

Gender Male

Age at diagnosis 14

Naming some of his plaques was a coping strategy for Steven, though he now prefers not to spend a long time focusing on his skin.

Age at interview 22

Gender Male

Age at diagnosis 14

Steven talks about some of his psoriasis symptoms, such as flaking and the redness of his skin, and people’s reactions.

Age at interview 22

Gender Male

Age at diagnosis 14