Feelings and emotions

Having arrived at the point of treatment, men will probably have already experienced a mix of feelings and emotions (see ‘Hearing the diagnosis). This mix of emotions may continue in the lead up to the treatment and throughout its course. For some, the experience is hard to take in, especially if they have not had long to come to terms with their diagnosis. Men may feel confused or numb. Fear, anger and guilt are also common and uncertainty or confusion about what is happening can intensify these emotions. If men have not heard about penile cancer before, they may feel like they are alone in experiencing the illness, which can lead to a feeling of isolation.
Sharing thoughts and feelings with others is often the best way to cope with complex emotions (see ‘The support of others). Friends and family may also be experiencing deep emotions and sharing these can be beneficial for both parties. Some men may prefer not to talk to people close to them. Others may find it easier to speak to someone else such as a specialist nurse or counsellor (see ‘Professional support for penile cancer) or may choose to talk to fellow patients (see ‘Telling others).
Before having surgery, it is likely that men will experience a range of emotions. Of the men we spoke to, several talked about feeling nervous, anxious or scared during the lead up to their surgery and on the day of their operation.

Colin was anxious and stressed on the day of the operation. He wanted to get it finished.

Age at interview 62

Gender Male

Age at diagnosis 62

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Simon was quite scared leading up to the operation.

Age at interview 65

Gender Male

Age at diagnosis 63

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Jordan was relieved when he rang the hospital the day of his operation and he was initially told…

Age at interview 58

Gender Male

Age at diagnosis 57

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Rodger felt nervous before the operation, but he doesnt worry about things a lot and he didnt…

Age at interview 65

Gender Male

Age at diagnosis 63

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Although some men felt anxious before their operation, many said they knew it was something that had to be done and they wanted it over with as soon as possible. Whilst Michael didn’t have any fears about surgery he simply wanted it to be over. Steve was happy to put his trust in the professionals treating him and that the best strategy was to stay calm. Having experienced previous operations, Tom felt the penile surgery was relatively simple and therefore he was not worried. Leading up to the operation, Tim was more excited than nervous, and said that in a strange way the new technologies and experiences made it quite fun. Frosty felt on edge a few days before his operation but he felt calm the night before. Having access to good information about what to expect and feeling prepared helped some men to cope with their emotions (see ‘Information on penile cancer). Others just wanted the doctors to go ahead and do what was needed.

Michael didnt have any fear but he felt a little anxious about the operation. He wanted to get…

Age at interview 79

Gender Male

Age at diagnosis 77

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Steve has always had the philosophy that he shouldnt worry about what he cant control.

Age at interview 71

Gender Male

Age at diagnosis 65

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Tom had previously had surgery. He viewed the operation on his penis as similar to having an…

Age at interview 71

Gender Male

Age at diagnosis 69

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Tim was quite excited by all the technologies and the new experiences.

Age at interview 54

Gender Male

Age at diagnosis 53

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After penile surgery, men may again experience a range of emotions. A number of men talked about feeling relieved that the operation was over and a few felt a sense of joy that they had survived the procedure. Les was ‘chuffed’ that cancer hadn’t killed him and although his penis looked different it was still functioning as it had done before his operation.

After the surgery Jordan felt glad it was over and he was pleased that he had done it.

Age at interview 58

Gender Male

Age at diagnosis 57

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John felt relief after seeing the results of the partial penectomy and reconstruction. It was…

Age at interview 75

Gender Male

Age at diagnosis 74

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Tom was surprised to be out of hospital within 24 hours of his operation and not inconvenienced…

Age at interview 71

Gender Male

Age at diagnosis 69

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Whilst some men may feel a sense of interest in the results of the operation, others may experience a sense of fear and trepidation. Jim said that he felt no sadness, but was glad the operation was over and interested to see the results. John Z however was reluctant to have a look at his penis.

Jim was interested to see how much had been taken away after his partial penectomy.

Age at interview 60

Gender Male

Age at diagnosis 58

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Initially, John Z daren’t look at the results of the operation. When he did look he was shocked and was afraid he would have to wear a catheter for the rest of his life.

Age at interview 68

Gender Male

Age at diagnosis 64

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Seeing the results of surgery, even if men have been told what it is going to look like, can be shocking at first. Some men were surprised at how much had been taken away. When first seeing the results, David took the assumption that everything would be okay. Despite more being removed than he had expected, Steve decided he had to live with what he had and shouldn’t worry about it. For some, accepting the results of the surgery and looking at the positives was important.

David had a sense of uncertainty about seeing the results of his operation but doesn’t remember…

Age at interview 70

Gender Male

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Steve was surprised when he saw the results of the operation; however he decided he had to live…

Age at interview 71

Gender Male

Age at diagnosis 65

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Mick was pleased with the results of his operation. It was a little bit smaller, but it was just…

Age at interview 69

Gender Male

Age at diagnosis 67

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Whilst it was a bit of a shock to see, Frosty was more impressed by the results of his surgery…

Age at interview 68

Gender Male

Age at diagnosis 65

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A few men told us that they felt very shocked when they saw the results of their surgery. The levels of shock the men experienced differed considerably and may be linked to each man’s expectations about their surgery. Paul and Mark did not expect to have such drastic surgery and they felt very shocked and distressed when they first looked at their penis after their operation.

The first time Paul saw himself in the bathroom mirror after his operation, he was very shocked…

Age at interview 61

Gender Male

Age at diagnosis 59

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After surgery that involved creating a slit down his foreskin (a dorsal slit), Mark was very…

Age at interview 48

Gender Male

Age at diagnosis 46

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Work and finances

Being treated for penile cancer usually means spending some time in hospital. Working men will need some time away from their job both for the...