The event: a stroke or transient ischaemic attack (TIA)

Here people talk about their experiences of having a stroke.

The most common symptoms spoken about were numbness and weakness on one side of the body (arms, leg or face).

The numbness or weakness resulted in people being unable to pick up or hold things. One man who was working as a builder found he could not use his tools. Another said his right arm seemed to have a mind of its own. Some described the numbness as similar to that experienced when the circulation has been cut off by sitting or lying awkwardly and only became concerned when it did not pass or they had other symptoms.

He was at work as a builder when he had his stroke and found he could not use his tools.

Age at interview 52

Gender Male

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He woke in the morning feeling like he had slept awkwardly on his leg but the feeling did not…

Age at interview 56

Gender Male

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A few people had a drop in one side of their face which they or somebody else noticed.

His partner realised hed had a stroke because the left side of his face was drooping.

Age at interview 66

Gender Male

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Some people’s balance was affected by weakness on one side of their body causing them to fall over or slump to one side when sitting. One man without weakness in one side of his body felt dizzy and sick and had coordination problems. It was later discovered that he had a rarer location of stroke which affected the balance area of his brain.

Weakness in the legs made walking difficult for some people because the leg was dragging. Sometimes the leg had given way causing a fall. A few said that they were completely paralysed and could not move.

Her daughter found her on the floor she was unable to move or speak and remembers very little…

Age at interview 55

Gender Female

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Speech is commonly affected by stroke. Some people noticed that their speech had become slurred and clumsy, this was usually because of weakness in the facial muscles. Some people found that their speech recovered rapidly.

Jessica experienced her stroke while she was cleaning her car. When her neighbour tried to help…

Age at interview 23

Gender Female

Age at diagnosis 21

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The left side of her body went numb and she was unable to speak. Her speech recovered when she…

Age at interview 66

Gender Female

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A few people either could not talk at all or struggled to get the words out. One woman, who now has ongoing problems with finding the words she wants and understanding the speech of others (aphasia), thought she was speaking normally but heard strange sounds coming from her mouth.

When she had the stroke she was completely paralysed and when she tried to speak strange noises…

Age at interview 54

Gender Female

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Bodily functions were sometimes affected by the stroke. Weakness in the facial muscles occasionally caused people to dribble and one woman had found it difficult to swallow her breakfast. A few people told us that they had lost control of their bladder or bowel and this is actually quite common.

Visual symptoms of a stroke included double vision or only seeing half of a face, television screen or page of writing. If visual symptoms occurred in isolation people often ignored them or decided that they were having a migraine.

Stroke can cause confusion and strange emotional feelings in the early stages. A woman whose mother had a stroke said her mum heard music and had seen someone knocking at the window when there was no one there. A few people felt very emotional and started to cry – a man was soon reassured by the doctor that this was a normal part of stroke.

Pain was not usually experienced in the initial stages of stroke, but did occur in some cases (see Malcolm’s clip below).

Stroke may be accompanied by a headache. Sub-arachnoid haemorrhage (bleeding from a weak artery over the surface of the brain) is usually noticed by a sudden (instantaneous) severe headache. One woman who had a haemorrhage had a blinding headache; another woman had a haemorrhage without any headache. A third woman had two sub arachnoid haemorrhages both were accompanied by a severe headache she described as like being hit on the back of the head with a sledge hammer.

Some people had no memory of the stroke either because they lost consciousness or because their stroke happened during an operation, or because they were asleep when it occurred.

Jackie was found by her daughter in her kitchen where she had been lying (in and out of…

Age at interview 61

Gender Female

Age at diagnosis 53

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In some cases, individuals thought that their symptoms were related to a pre-existing health condition and did not realise that they were actually having a stroke.

Clare was at home working with her husband when her eyesight went blurry, She initially thought…

Age at interview 50

Gender Female

Age at diagnosis 46

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Malcolm experienced pains in his chest and was sweating. He assumed that he was having an angina…

Age at interview 67

Gender Male

Age at diagnosis 64

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Some people experienced a stroke after one or more Transient Ischaemic Attacks (TIA/minor strokes).

A TIA occurs when there is a temporary loss of flow of blood to the brain. The symptoms of a TIA are similar to that of a stroke but are usually milder and pass within hours. As a result, a TIA can be referred to as a ‘minor stroke’.

People described the experiences of temporary loss of vision, limb weakness, and slurred speech. Some had realised that there was something wrong and had sought help from the doctor particularly if their symptoms reoccurred. Others who had gone on to have a stroke reflected back on an event which they thought might have been a TIA and sometimes wished they had gone to the doctor sooner.

He had frequent transient ischaemic attacks which caused temporary dizziness, hand weakness and…

Age at interview 84

Gender Male

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Realises that two events before her major stroke were probably transient ischaemic attacks and…

Age at interview 44

Gender Female

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For more information on TIA’s please refer to the our TIA section.

When and where did stroke or TIA occur?

People’s strokes or TIAs most often came on at home and were not triggered by any specific event. In a couple of cases the stroke occurred in hospital following surgery or treatment for another condition.

Mr Singh had a stroke in hospital after being admitted for a heart attack. The stroke occurred…

Age at interview 65

Gender Male

Age at diagnosis 58

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Symptoms usually came on rapidly although a few people we spoke to had symptoms over a number of days. One woman had visual symptoms over a few days only went to her doctor after she started struggling to talk to people at a party.

Thought her problems with vision, speech and a drooped mouth were due to migraine or old age. But…

Age at interview 68

Gender Female

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The majority of people were up and about when the stroke happened. A few people however woke in the night or early morning and on getting up had some symptoms usually weakness in one side of the body or being unable to move.

A doctor speaks: an introduction to stroke

Dr Charles Warlow is Emeritus Professor of Medical Neurology, Western General Hospital, Edinburgh and is one of the UK's leading neurologists and stroke researchers. In...

Getting medical help for a stroke

Stroke symptoms can vary in type and severity and sometimes people experience unusual symptoms (see 'The event' a stroke or TIA'). {media 41968} Many people...