Difficult parts of IVF/ICSI treatment

Couples sometimes find that dealing with infertility and its treatment is both physically and emotionally demanding. While they were often very grateful for their treatment, many also felt frustration, resentment and sadness at needing to have medical treatment to get pregnant. Some of the couples we talked to said that they felt they had failed at something that should be so natural and easy.
Belinda was shocked by how clinical the treatment was, and felt the romance of trying to conceive had completely gone. Clare felt that something so special and romantic had been ‘destroyed’ by IVF.

Naomi conceived twins with donor eggs and sperm, but while incredibly grateful to medical science…

Age at interview 35

Gender Female

Age at diagnosis 30

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Several women felt that each cycle got harder, as they grew more familiar with the highs and lows.
Sandra, and others, said they wished they had known how physically and emotionally hard it could be to go through treatment. Liz described her ICSI treatment as highly traumatic, almost comparable to a terminal illness because of the nature of the, ‘Be all and end all outcomes’.

Fiona now realised she was not prepared for how hard it was going to be. Talking to other people…

Age at interview 41

Gender Female

Age at diagnosis 33

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People were also often surprised to discover what was involved in treatment – for example not everyone knew in advance that egg collection involved an operation. One woman said that she had imagined it might be like a ”glorified smear test’; another thought it might involve a spatula.

Clare had to overcome her fear of needles and was surprised to discover that egg collection…

Age at interview 35

Gender Female

Age at diagnosis 31

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While some people described unpleasant side effects from the drugs, such as mood swings and tiredness, the main unpleasant physical side-effects of treatment was associated with egg collection. Clare (above) and others did not find egg collection painful or upsetting, but others found it very unpleasant or even ‘horrible’ as Fiona described it. She had opted to remain awake for her first egg collection and found it very painful. The next time, her mother lent her the ¬¨¬£100 she needed to have a general anaesthetic.

Fiona described the unpleasant side effects of her IVF, in particular how agonising she found her…

Age at interview 41

Gender Female

Age at diagnosis 33

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Sarah found her egg collection incredibly painful, and described it as, ‘Without a doubt the worst experience of my lifejust so awful.so traumatising.’ Egg collection was also described as a difficult experience by the men who witnessed their wives or partners going through it (see ‘Men’s experiences of fertility treatment‘).
Some women also experienced hyperstimulation (OHSS) as a result of the drugs. This can vary from mild to severe. It was uncomfortable and frightening, and for some women this meant that they had to stop their cycle until the bloating had gone down.

Martha was hyperstimulated with the drugs given to her for her IUI and found it was even worse…

Age at interview 34

Gender Female

Age at diagnosis 30

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Emotional Impact

Many women (and men) found the emotional impact of fertility treatment the hardest thing to cope with. Women described the treatment and uncertainty of whether it would work or not as hitting them on many different levels. Sarah said that she found it a shock to be one of those people going through the ‘tragedy’ of fertility treatment.
People we talked to often said that the most difficult part of the cycle of fertility treatment – be it IUI, IVF or ICSI – was the waiting. There was the waiting for appointments to arrive and the treatment to start. Several described the isolation of this period – one called it a ‘black hole of waiting’, another, ‘its all just one long wait’. But the hardest was often the two-week wait after embryo transfer or IUI to find out whether or not the treatment had worked. Women had different ways of coping with these weeks. Some took time off work and either rested at home or took a short break away. Others tried to forget about it as much as possible by keeping busy.

During the wait after embryo transfer, Clare monitored her every physical sensation as a possible…

Age at interview 35

Gender Female

Age at diagnosis 31

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The emotional journey of fertility treatment is often described as a rollercoaster, a continuing cycle of potential highs and lows at subsequent stages of the treatment. Nigel said the various failed treatments he and his wife had were a ‘massive emotional rollercoaster’.

Sarah was prepared for one disappointment at the end of her IVF treatment, but not all the ups…

Age at interview 36

Gender Female

Age at diagnosis 33

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Women sometimes described the emotional aspects of treatment as affecting them in every part of their lives. Mary said IVF was a ‘harrowing process’ to go through, hitting you on a physical, emotional and social level. Frances found her treatment ’emotionally wearing’. Women sometimes felt as though their lives had been on hold, but also found it hard to turn off the desire to be a parent. The fact that references and pictures of pregnancy and babies seem to be everywhere (in the street, on the TV, in the supermarket) was sometimes really hard to bear.

Carol felt that her life has been on hold for too long, and yet found it very hard to turn off…

Age at interview 39

Gender Female

Age at diagnosis 27

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Naomi said that she never imagined that not having a child would take such a toll on many areas of her life.

Age at interview 35

Gender Female

Age at diagnosis 30

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Catherine was finally successful conceiving through IVF but she was surprised how her infertility…

Age at interview 45

Gender Female

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Brian felt as though his life was on hold, but that his wife felt as though her life was over. He…

Age at interview 33

Gender Male

Age at diagnosis 32

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The uncertainty of whether their treatment was going to work and a sense of being out of control, or powerlessness, was very difficult for people to cope with. Women sometimes described their infertility as being a real knock to their self-confidence. Some thought that other people did not always understand how difficult it was, or lacked sympathy when it came to using NHS resources for fertility treatment.

Martha found it incredibly frustrating to be up against something that she could not find a way…

Age at interview 34

Gender Female

Age at diagnosis 30

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Rachel gave up treatment and went on to adopt two girls. She found her infertility a real knock…

Age at interview 48

Gender Female

Age at diagnosis 41

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When fertility treatment fails

After the highs and lows of an IUI, IVF or ICSI cycle, receiving the news that the cycle has not worked can be a devastating...