In this section you can find out about the experiences of parents who have a baby who is diagnosed with a problem that needs surgery, by seeing and hearing parents share their personal stories on film. Sometimes a baby is born with a condition that means he or she will need an operation in early life. These conditions represent a real spectrum, from the relatively minor to very major. Most conditions are rare, so hospitals and surgeons may only see children with them infrequently. Parents can often feel very alone. We travelled around the country and talked to 44 parents about issues such as diagnosis, birth planning, the surgery itself, and life back home. We hope you find the information helpful.
Because all of the people who took part in our study were people who had experience of neonatal surgery, we did not include people who chose to terminate a pregnancy. But you can read more about people who did make this choice on our website Ending a pregnancy for fetal abnormality. You may also be interested in our other websites on Antenatal screening & Pregnancy.
You can start viewing topics by clicking 'Next Topic' above, or selecting from the list on the left. You can also view 'People's Profiles' from the tab above.
Publication date: February 2017 Date of review: February 2019