Motor Neurone Disease (MND)


Welcome. Healthtalkonline, an award-winning charity website, lets you share in other people's experiences of health and illness. This information is based on qualitative research into patient experiences led by experts at the University of Oxford.

We are very grateful for all the help and support we have received in producing this module.


Advisory Panel

Ann McPherson
Medical Director - Health Experiences Research Group, Department of Primary Health Care, University of Oxford.
Anthony Harnden
GP and University Lecturer in Primary Care, University of Oxford
Crispin Jenkinson
Director, Health Services Research Unit, University of Oxford
Janice Brown
Senior Lecturer, School of Nursing and Midwifery, University of Southampton
Kevin Talbot
Consultant Neurologist, Oxford Radcliffe Hospitals Trust, and Senior Clinical Research Fellow, University of Oxford
Liz Garrood
Regional Care Development Adviser (NW Thames) MND Association
Phil and Janet Baker
Patient and carer representatives
Rachael Marsden
Specialist MND Association Nurse, Oxford Centre for Enablement
Sharon Schillerstrom
Care Information Resources Manager, MND Association
Tricia Holmes
Director of Care Development, MND Association

Acknowledgements and thanks 
To all those who took part in interviews, and the MND Association Regional Care Development Advisers, GPs, consultants and specialist nurses who helped us recruit participants. We would especially like to thank the MND Association for their ongoing help with updating the site and keeping the information accurate.

Supported by:
MND Association
NHS Service Delivery and Organisation Research and Development Programme


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