We are very grateful for all the help and support we have received in producing this module.
Medical Director - Health Experiences Research Group, Department of Primary Health Care, University of Oxford.
GP and University Lecturer in Primary Care, University of Oxford
Director, Health Services Research Unit, University of Oxford
Senior Lecturer, School of Nursing and Midwifery, University of Southampton
Consultant Neurologist, Oxford Radcliffe Hospitals Trust, and Senior Clinical Research Fellow, University of Oxford
Regional Care Development Adviser (NW Thames) MND Association
Phil and Janet Baker
Patient and carer representatives
Specialist MND Association Nurse, Oxford Centre for Enablement
Care Information Resources Manager, MND Association
Director of Care Development, MND Association
Acknowledgements and thanks
To all those who took part in interviews, and the MND Association Regional Care Development Advisers, GPs, consultants and specialist nurses who helped us recruit participants. We would especially like to thank the MND Association for their ongoing help with updating the site and keeping the information accurate.
NHS Service Delivery and Organisation Research and Development Programme