Researchers' experiences of patient & public involvement


In this section you can find out about the experiences of health researchers of involving patients and members of the public in their research, by seeing and hearing people share their stories on film. Involvement is about research being carried out with or by members of the public, who may play a role in any or every aspect of the research process. Our researchers travelled all around the UK to talk to 36 people (35 interviews) working in health research, including clinical and scientific researchers, social scientists, and people with a specific role coordinating patient and public involvement in research. Find out what people said about their reasons for involving people, the impact it has made, what some of the problems have been, and how involvement can be better implemented and supported.  We hope you find the information interesting and helpful.

Publication date: January 2016
Review date:  
January 2018


Please use the form below to tell us what you think of the site. We’d love to hear about how we’ve helped you, how we could improve or if you have found something that’s broken on the site. We are a small team but will try to reply as quickly as possible.

Please note that we are unable to accept article submissions or offer medical advice. If you are affected by any of the issues covered on this website and need to talk to someone in confidence, please contact The Samaritans or your Doctor.

Make a Donation to

Find out more about how you can help us.

Send to a friend

Simply fill out this form and we'll send them an email