Clinical trials: Parents’ experiences


Welcome. Healthtalk, an award-winning charity website, lets you share in other people's experiences of health and illness. This information is based on qualitative research into patient experiences led by experts at the University of Oxford.

We are very grateful for all the help and support we have received in producing this module.


Advisory Panel

Iain Chalmers (Chair)
Editor, James Lind Library
Jhon Bateman
Young person representative 
Peter Brocklehurst
Director, National Perinatal Epidemiology Unit, University of Oxford
Leonie Connolly
Young person representative
Hugh Davies
Consultant Paediatrician, Research Ethics Advisor at the National Research Ethics Service
Mary Dixon-Woods
Professor of Medical Sociology, University of Leicester
Amanda Hall
Lecturer & Clinical Scientist, Bristol Royal Hospital for Children
Anthony Harnden
Lecturer in General Practice and Head, Clinical Trials Unit, University of Oxford
Sophie Longton
Young person representative
William van’t Hoff
Consultant Paediatric Nephrologist & Co-Director of the NIHR Medicines for Children Research Network
Jenny Newman
Consumer Liaison Officer, Medicines for Children Research Network
Claire Snowdon
Lecturer, London School of Hygiene and Tropical Medicine, University of London

Thanks are extended to all the parents who shared their experiences, to the researchers, clinicians, research nurses and members of the Medicines for Children Research Network, charities and other organisations including research and development departments, who helped us recruit parents and to Louise Locock for help with data analysis.
Thanks to:
Natalie King and Kate Bratt-Farrar who were members of the charities Juvenile Diabetes Research Foundation and Cerebra respectively and Matthew Thompson, Clinical Scientist, University of Oxford.
Supported by:
National Institute for Health Research. The views expressed are those of the authors and not necessarily those of the NHS, the NIHR or the Department of Health.


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