What about relationships? Have you had relationships?
Would you like to?
Maybe in the future, but at the moment I’m happy. I don’t know. It never really interested me until recently, but I don’t know. I don’t want to like get married and then having them to take care of me or and I don’t feel comfortable to have children and I don’t want, I don’t want… it’s because of my back going through the pregnancy would be no good, so, I don’t know. I’m in two minds about getting married *and I don't think I'd be a good mother.* (added by participant)
Did you say that you wouldn’t, you wouldn’t feel comfortable with a husband looking after you or you would?
I wouldn’t. I don’t… maybe I would but at the moment I don’t, I don’t want them to be burdened with looking after me. I know I might have a PA – a personal assistant but would that be right? Would someone be happy? I don’t know, to be married to someone that, you know, you know. I don’t know, I can’t tell.
In what ways do you think, you having this condition has affected your parents?
In a lot of ways. They don’t go out much on their own, because they’re worrying about me. They worry that they have to give me medicines a lot and treat me with the peg, and having, and seeing me unwell, if I’m unwell, and can’t be bothered taking, going through with me with operations. When I’m nervous, they’re nervous of course. It’s, they can’t go away on their own if they want to, because of me.
I do have a brother as well who’s married. And I think his life was affected as well by it, because when I was younger I was a lot in hospitals with chest infections and things like that. So it wasn’t a very good thing for any one of us. He is helpful and caring as well. He’s qualified as a doctor, but he’s still specialising. [laughs] And going through the system.
But they are helpful. Sometimes I go and stay with them if my parents are invited out somewhere, and when my grandmother died a few years ago, and my dad went, my mum was already in Israel, because that’s where my grandma lived and my dad went out for the burial and he went on the Thursday and then came back on the Monday and I stayed with my brother then. So they are helpful.
I don’t like asking them a lot, but because again I don’t want them to feel that I’m a burden on anyone. But they are helpful. I am glad, I happy to have good brother like that. And my sister in law’s excellent. When my mum’s away she sometimes helps with giving me a wash, because I can’t do it myself so… or inviting us for meals, me and my dad. So they are good. And my nephew and nieces are adorable [laughs]. And they try to help giving me medicines when I’m there. Yes. They are adorable.