Well I'm a bit of an internet freak in the sense that I, you know I like to know about things if I’m going to be, if I’m going to be involved in something I want to know about it, I don’t like to sort of launch myself into things where I don't know what’s going on, okay, so on to the internet I go and start looking up and after about six, it took about six months before I found The Prostate Cancer Charity as it happens, and their message board, their bulletin board.
So tell me about different support groups then that you may be involved in?
Okay, well the hospital that I go to actually has a Maggie centre, if I’m allowed to mention those, which was, it’s a place for people with any sort of cancer can go to, anyway they also set up a prostate cancer support group which I went to just for a little while, but since I was already on the Prostate Cancer [Charity] message board things, I didn’t really feel I got anything out of that, and possibly didn’t contribute.
So anyway they have a prostate cancer support group as well, but I didn’t really feel I was getting much out of it, because I was already a member of the prostate cancer bulletin board, message boards, and I didn’t really feel I could contribute an awful lot either, because at the time, perhaps because it was a start up group and people were mostly new, they were new diagnoses, so at that stage they were in shock and all the rest of it, and it probably helped them, I hope it helped them, but if you like, I’d got over that particular hurdle, so I stopped going to that, but the the prostate cancer message board is where I find, you know, most support, I try to contribute when people first sign on, because you know, they generally are in some sort of shock, and you know, it’s good to be able to say to them, you know, “look we’ve all, we’ve been through this stage, you know, it was hell and we know it is but you know, I’m four and a half years down the road so, and its spread to my bones”, if the person, has spread to their bones, you know, “and I’m still very fit”, you know, and one feels that probably helps, one hopes that helps people, okay, and also you know, there’s a very wide range of people, if you have an issue, I mean, when I started having my hip issues, and things like, I posted questions about my own condition, and you know, got helpful replies back, when I, when I decided I’d try a trial, okay, you know, that was very useful because some of the people were on the trial and were able to feed back, unfortunately I was not eligible, and so on, so that I found the most... I spend a lot of, I must confess I probably spent more time than I should on it, I probably spend getting on for an hour a day on it perhaps, seeing who’s posted and perhaps replying to people.